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Getting to the bottom of chronic pain in adults with CP: how understanding the experience of pain means more effective solutions

Дата публикации: 19-05-2026 02:00:16

On Tuesday, May 26, at 8 pm ET, the Cerebral Palsy Research Network will host a live MyCP community webinar about chronic pain in adults with CP. Pain is one of the most common and frustrating issues people with cerebral palsy report. It impacts the entire population from pediatrics through adulthood. There are different types...
The post Getting to the bottom of chronic pain in adults with CP: how understanding the experience of pain means more effective solutions appeared first on Cerebral Palsy Research Network.


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On Tuesday, May 26, at 8 pm ET, the Cerebral Palsy Research Network will host a live MyCP community webinar about chronic pain in adults with CP. Pain is one of the most common and frustrating issues people with cerebral palsy report. It impacts the entire population from pediatrics through adulthood. There are different types of pain, many sources and causes, and different ways of treating it.

During this webinar Dr. Eric Chin, a neurologist from Kennedy Krieger Institute, will present research on why pain affects people with CP so differently.

Dr. Eric Chin of Kennedy Krieger Institute

Understanding what kind of pain someone is experiencing, and how thoughts, mood, and sensory differences interact with that pain, can help personalize treatment and target pain strategically to improve quality of life.

What you will learn about during the webinar:

Using data self-reported by adults with CP from the MyCP Community Registry surveys, Dr. Chin and colleagues are examining if thought patterns and how people with CP relate to their pain will help to better address it. The team is also studying whether differences in brain structure cause or amplify pain in some people with CP.

We are making steady progress in pain management for people with CP, and in some cases, cognitive behavioral strategies such as CBT or similar goal-oriented psychotherapeutic techniques may help the person relate to their pain differently and experience it with less intensity and disruption to their daily lives.

The Network’s efforts to reduce the impact of pain for people with CP:

Partnering with our community to study pain and identify the best potential solutions for it is leading to meaningful progress in pain management for people with CP.

Check out another study published this Spring that is changing how pain is evaluated during healthcare visits by sites participating in our Network: First steps toward pain classification among adults with cerebral palsy: A modified Delphi Study was published on April 28, 2026, in Disability and Health Journal at doi 10.1016/j.dhjo.2026.102080.

Join MyCP today to help us shape the future of CP research. You can take part in surveys like the ones that led to this study, receive notices about future community webinars, and connect with peers who share your experiences.

Click here to see Getting to the bottom of chronic pain

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