Check out IACCtion: ASAN’s IACC Action Center On July 20th, the IACC put out their Strategic Plan. This plan tells the government what the IACC thinks should happen with autism research and policy. The IACC is taking comments about the Strategic Plan until August 20th. You can send in a comment to let the IACC...
The IACC’s Strategic Plan has a lot of bad ideas that would hurt autistic people.
Policies about institutions
The IACC wants the government to change rules about where autistic people can live and get services. These changes would make it easier for autistic people to be sent to institutions. An institution is a place where only disabled people live. People living in institutions don’t get to make important choices about their lives. Many people get hurt when they live in institutions. They might get hurt by staff, or not get the health care or services they need.
Most autistic people want to live in the community. Changing rules about institutions would mean autistic people get less choices about our lives. Less autistic people would get to live in the community.
The IACC’s Strategic Plan also talks about “farmsteads” as places autistic people could live. Farmsteads are when a group of disabled people live and work together on a farm. Farmsteads are still institutions. They still keep autistic people separate from non-disabled people. They still take away autistic people’s freedom.
Finding the cause of autism, or trying to stop autism from happening
The IACC’s Strategic Plan says most autism research money should be spent on finding the causes of autism. The Plan also says more research money should go to figuring out how to stop autism from happening.
It would be very bad if more money went to these kinds of research. Autistic people should get to be autistic. Research about autism’s cause or stopping autism makes people think autism is a bad thing. It leads to autistic people getting less support to live our lives.
How autism research money could get spent
The IACC says that the Strategic Plan would not take away any money from autism research. But the plan says some of the research money could get moved around. That means more money could get spent on research that hurts autistic people. And when more money goes to bad research, there could be less money for good research.
This would be a big problem when it comes to research about services. Right now, research about services already does not get a lot of money. But the IACC could try to change how this money gets spent.
For example, less research could happen to help autistic people get services in the community. More research could happen about giving people services in institutions.The IACC says services research would not lose any money. But research about living in the community could still lose money.
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