Paniek is uitgebroken onder de Nederlandse patiëntengroep van mensen met de erfelijke bindweefselaandoening Ehlers-Danlos (EDS), nu zorgverzekeraars hun gespecialiseerde revalidatiebehandelingen niet meer vergoeden. Nicky van Ginneken (39) is een van de initiatiefnemers die onlangs actie voerden in Den Haag om aandacht te vragen voor dit probleem.
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